When a child is diagnosed with cancer: Part II

Treating a child with cancer does not start and stop with the medical interventions.

There must also be careful consideration & management regarding the emotional and psychological health of the child, the parents, other siblings (if applicable), and the family in general. It is important to maintain as normal a routine as possible for the child, including schooling, time with friends, and enjoyment of other activities. While this may be disrupted if inpatient treatment is necessary & during recovery from treatment, the more the usual routine can be followed, the better for the overall health & wellbeing of the child and family. Of course, if modification is necessary for comfort, that is completely understandable. You have to do what works best for you and your family, and sometimes that means being flexible and adapting as needed.

What are some ways to create stability in routine?

1. Reading familiar books, maintaining a similar bedtime rouotine

2. Eating a family meal together

3. Doing something creative or something that brings you joy, particularly an activity that requires minimal effort

4. Prioritizing rest when needed

5. Working on school activities together (if applicable)

6. Finding ways to remain social, even if it can only be virtual (based on current needs & recommendations from healthcare team)

7. Scheduling virtual calls with school friends

Involvement of child life specialists can be very beneficial in this regard. This service is frequently available through pediatric specialty centers. Child life specialists work with children & families to help them cope with some of the stressors they may experience while being treated for cancer. They help families by providing different coping strategies while undergoing different medical procedures, preparing mentally for various tests / diagnostic procedures, providing parent education and ways to be supportive & educated on such procedures, developing coping tools for sibling support, etc.

There are many resources that can assist families, particularly during the treatment phase of childhood cancers. Connecting with other families with children with similar cancer types and treatments is critical to increase support for the family. Obtaining financial resources regarding travel and accommodations, if needed, is also available through many organizations and should be explored. It is also important to obtain reputable information from such sites as ‘cancer.net’, ‘cancercare.org’, ‘childrenscancer.org’, as well as sites dedicated to the specific type of cancer. If you follow me on Instagram, I recently covered this topic and offered some resources specifically for childhood cancer support here:

1. Comfort items for hospital stays

2. Parental Health & Childhood Cancer

3. “My child just received a cancer diagnosis, what is my first step?”

4. How to support a family whose child was diagnosed with cancer

5. National Childhood Cancer Awareness Month

In anticipation of upcoming appointments, it can be helpful for parents to put together a list of questions to ask the treating providers. These 6 questions can include (and are not limited to) the following:

1. Is the diagnosis correct and how do we know? This question is not intended to offend the treating provider- the intention is to provide more insight on clinical findings, diagnostic results, pathology findings, etc. The more informed we can be as parents, the more we can understand the details of the child’s care plan, collaborative next steps, and how to best navigate it.

2. Can we have a second opinion? Again- this question is not intended to offend the treating provider. Having a second opinion can also help the family to feel more confident and empowered in the care that they are receiving and to further confirm the stage of the disease & diagnosis. Also, some centers may offer more advanced treatment options.

3. What are the treatment options and the associated advantages & disadvantages? The discussion of quality of life is a major consideration here. Being informed on the possible advantages & disadvantages of certain treatments allows you to feel more empowered while making such personal family decisions. It is important to consider and discuss the goals of treatment, which includes not only treating the cancer itself but maintaining comfort, symptom control, and quality of life.

4. Is the treating provider a pediatric specialist or is a referral to a pediatric specialist necessary?

5. What resources and services are available to help with support for the family and finances? Here is a list of resources for additional financial support: financial assistance for teens & children

6. How do we maintain as normal a routine as possible during treatment?

By considering the factors discussed above, the unimaginable difficulty of treating childhood cancer can be made somewhat more manageable for the child and family. For more information on this topic, please visit @ParentSuitcase on Instagram.

#childhoodcancer #cancercaresupport #childhoodcancerawareness #parentsupport #parentingresources

Disclaimer: The information on this platform is not intended or implied to be a substitute for personal professional medical advice, diagnosis, or treatment. All platform content including text, graphics, images, and information is for general information purposes only & does not replace clinical consultation with your own doctor/mental health professional.

The Importance of Community: Part II

Would you consider a disrupted support system to be a risk factor for postpartum depression?

One of the (many) reasons why community support for parents is so vital…MENTAL WELL-BEING!

In an ideal (frankly realistic!) world, postpartum parents would receive additional external support & extended time off granted for postpartum recovery following the birth of their child(ren). Over the past 2.5 years, support systems have drastically shape-shifted to navigate unpredictable circumstances due to CV-19, leaving many without reliable backup newborn support / childcare, household support, local support, etc.

We have all read & seen statistics on both postpartum depression and postpartum anxiety covered on social media. According to various bodies of research, anywhere from 1 in 7-10 women will experience postpartum depression following birth.(1) It’s also been estimated that approximately 50% of mothers with postpartum depression are not diagnosed by a healthcare professional. (1)

Whether your friend, neighbor, or a beloved family member has postpartum depression OR is exhibiting a change in mood or behavior, one of the most important things to do during that period of time is to demonstrate support, encouragement, and to be nonjudgmental. It can be very difficult for people to reach out if they feel like they are being judged either silently or outright.

What are some of my favorite resources for parents who are struggling to find community and / or may be looking fo additional therapeutic support?

Here are 5 resources to utilize if you or someone you know needs additional support as a postpartum parent:

1. Postpartum Support International: https://www.postpartum.net

   PSI HelpLine: 1-800-944-4773 #1 En Español or #2 English

   Text “Help” to 800-944-4773 (EN), text en Español: 971-203-7773

2. 988 Suicide & Crisis Lifeline: if you or someone you know is struggling or in crisis, help is available. Call or text 988 or chat 988lifeline.org

3. National Alliance on Mental Illness: https://www.nami.org/help

   NAMI HelpLine can be reached Monday through Friday, 10 a.m. – 10 p.m., ET.
   Call 1-800-950-NAMI (6264), text "HelpLine" to 62640 or email us at helpline@nami.org

4. Perinatal Support Washington: https://perinatalsupport.org

   Need help? Call or text our toll free peer support line (se habla español).

   1-888-404-7763

5. The Family Help Line: http://www.parenttrust.org/for-families/call-fhl/ Call: 1-800-932-HOPE (4673) in Washington State
   

It’s not just therapy that is the answer here. It’s adequate resourcing, accessibility, equity, and feeling like you are DESERVING of support.
If you or someone you care about is experiencing concerning symptoms, please connect with a licensed mental health professional or healthcare professional to discuss in more detail.

Follow @Parentsuitcase on Instagram and Pinterest

Disclaimer: The information on this platform is not intended or implied to be a substitute for personal professional medical advice, diagnosis, or treatment. All Parent Suitcase website & Parent Suitcase social media platform content including text, graphics, images, and information is for general information purposes only & does not replace clinical consultation with your own doctor/mental health professional.

Sources:

1. https://www.postpartumdepression.org/resources/statistics/

What is Parent Suitcase?

Parent Suitcase is a community for parents everywhere, facing various struggles and circumstances. With an emphasis on genuine connection, community, and belonging, @parentsuitcase offers professional, evidence-driven resources that get to the true heart of the various issues parents face. The mission behind Parent Suitcase is to develop a community that holds what many parents have been lacking in their journey of navigating parenting obstacles; community, empathy, and connection.

Parent Suitcase has a distinct and intentional focus on quality of content + resources over the aesthetic “quick fix” method that’s currently crowding social media. PS aims to be a hub of insight + resources that tackle real topics that are often glossed over (if mentioned at all) on social media.

On this platform, we will be covering some difficult topics. My goal is to bring you data-driven content, real-life perspectives, hand-picked resources, and to further encourage collaborative dialogue. The “parenting village” that you have been looking for is being created right here; together, we will assemble a suitcase full of resource, outreach information, and education for you and for the community surrounding you.

Parent Suitcase also focuses on advocacy, charity, and informative collaborative dialogue with other platforms. If you are interested in collaborating, DM @parentsuitcase on Instagram and send me your ideas!

#parent #parenting #parentproblems #parentingsupport #singleparent #parentingbyconnection #momsofinstagram #momstruggles #parenthood #firstdayofschool #honestmotherhood #seattle #unitedstates #helpful #help #familylife #seattlehealth #careermom #community #parentcommunity #momtobe #dad #dadlife #momlife #dadtobe

Follow @parentsuitcase on Instagram and join my new Patreon here!

The Importance of Community for Parents: Part I

“Why do parents share their personal stories on social media? Aren’t they opening themselves up for criticism and trolling?”

This is a question that I was asked by another parent. I had to think about that one for a bit because I, too, am not big into sharing a lot of personal details on social media. When I originally developed Run Tell Mom, the mission focused on sharing other parental experiences in an effort to build community and to strengthen connections between parents (both alike and unalike). I wanted each story to be a candid take on a parent’s personal experience, one that may resonate with another parent somewhere else in this virtual world. The more story spotlights I featured, the more inquiries I would get to share from another lens. I absolutely LOVED it because it felt like a community wanting to learn more about others, wanting to connect during an isolating, scary period of time when connection seemed like a distant reflection in the rearview mirror.

I felt like social media was becoming increasingly more divided and more contentious, so my solution was to cultivate a virtual social space for parents that felt collaborative, welcoming, and inclusive. I started collaborating with some amazing platforms: speaking with different mental health specialists, authors, doulas, keynote speakers, and healthcare providers on my platform and things just started making so much more sense to me. I was connecting with individuals whom I wished I met before welcoming my now 5yr old. I wanted a different type of support that focused on the parent and not solely on the child.

Following that recognition, I knew that I wanted to focus more on prevention, specifically for parental burnout & family planning. When I say family planning, I mean this in a very abstract sense: gathering resources for mental health support, locating parent & caregiver support groups, finding ways to eat healthy when you’re bone-deep exhausted, how to cross-train with your partner to achieve household equity, etc. In order for me to fulfill those tasks, I had to take more of a front seat approach and be the face in the videos, the Reels, the face not just the headshot. That made me feel uncomfortable because I try to keep my work life separate from private life. Keep in mind: the more you share, the more vulnerable you become to criticism and trolling.

I noticed that there were two strong, recurring themes throughout each collaboration and interview: the importance of social connection and belonging (and to be honest, it’s haaaaaard to authentically create that on social media).

Naively, I thought social media would be the most “natural” way to cultivate a sense of parental belonging- the convenience, the immediacy, and the massive reach that social media offers… it seemed like a no-brainer! It’s not that straightforward.

I’ve had conversations with other parents about how social media feels “competitive” or “harsh at the best of times”. It can feel a lot like high school for many of us: the like-for-like behavior, following popular accounts within one’s niche in order to get your top comments pinned for more platform viewership, interacting with other people whom are (most likely) complete strangers within comments. I stepped back and did my own case studies on the behaviors we all (maybe subconsciously) participate in on social media and I thought to myself “..am I doing this for ME alone or am I doing this to help other parents and caregivers?”

In what other environment are we saying stuff like “thank you for sharing” 10,000 times on another creator’s feed just to feel seen? For many, there is this inherent drive to gain more followers under the guise of calling it one’s community without thoughtfully cultivating feeling of actual community. It’s one thing to authentically support one’s account and their mission, but commenting just to generate traffic to our account for likes feels superficial and self-centered. And full disclosure- I speak from personal experience because I’ve participated in this and it feels yucky and unproductive.

So to answer the question “why does it feel competitive?”- the answer is two-prong.

1. Comparing oneself to the meticulously-edited feeds with clean homes, Pinterest-perfect curated lunches, mothers grinning ear-to-ear in family photos, all while tallying up one’s “like count” and comparing it to other platforms can negatively impact one’s view of self and alter your own definition of parenting success. How would the self-doubt trickle in? And why does it feel like we are competing against other parents in order to see a boost in vanity metrics? Because with every static grid post, every Reel, and every Live interview, there are metrics that are captured & displayed- the amount of likes you get, the views your Reels get, the amount of individuals that tune-into your Live discussion. Tethering your self-worth and personal growth to these vanity metrics can lead one to believe that they aren’t doing it right unless their metrics demonstrate increased numbers. So how do we cleave this? We stop focusing on the metrics as the sole measure of one’s self worth as a parent creator on social media. If your mission is to help parents, allow that to be the measurement of your platform’s success.

The other unpopular topic I am going to pull back the curtain on: why do we call people within our community “followers”?

It feels derogatory to call people “followers”, in fact when we were younger, being called a “follower” was considered derogatory. Certainly, they are “following” your content because they feel inspired by it or maybe it makes them feel seen, but to haphazardly label a group as a “following” places the those individuals on a lower hierarchical level than the content creator.

Think about any account that you follow that exceeds 50,000 people within that community. Imagine the content creator posts a static grid with some provocative statement on that static grid post. It’s like a tinderbox waiting for a sulfur-tipped match to spark a verbally combative debate within the comment section. Now, imagine that static grid post featured an opinion on motherhood- criticizing one’s parenting skills, food choices, or non-physical disciplinary actions. It can get emotionally-charged and pick up engagement speed REAL quick. Can this divide a community? Most certainly, yes. I am 1000% supportive of having an opinion and expressing it tactfully, but verbally attacking others on social media, and in many cases a person you’ve never met before, has its risks and the impact can linger on far beyond that virtual environment.

Maybe it’s a bit of a pipe dream, but I want parents to feel like the platforms they follow are really considering their mental wellbeing and internal point of view, not just their own vanity metrics or posting something purposefully antagonistic in order to grow their own account.

I hope you hang here with me while I slowly start to spin my wheels on this new endeavor. I want you to feel welcomed and empowered here. I also want you to know that I cover some tough topics, so please be kind in the comments- we don’t know what other people are going through, but we know that we want to feel like we belong, like we are seen, and like we have a real community looking after us in a way that feels authentic and supportive.

Stay tuned for Part II,

-Shelley

Founder of @ParentSuitcase on Instagram and @RunTellMom on Instagram

Pinterest: here!